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Me

WhatsApp Image 2025-05-04 at 17.52_edite
Because I know how it feels...

Even as a child, I wasn't exactly slim – I was made aware of this early and often. While other children were allowed to simply be children, my body was a topic of discussion from an early age. From puberty onward, I began to understand less and less: Why do my legs and arms look so different? Why don't my shape resemble those of other curvy women?

The answers I got were always the same: weak connective tissue, cellulite, too little exercise, overeating. The blame always seemed to lie with me.

So, I started fighting against my body early on. I was constantly dieting. I bought clothes that were too small for my body as "motivation." I counted calories, avoided meals, and felt guilty about eating—my relationship with food was anything but healthy. Looking back, it was an eating disorder, fueled by shame, pressure, and the desire to finally look "normal."

My figure became the central theme in my life—and a stumbling block. At school, during my job search, and in everyday life, I was repeatedly reduced to my body. People invented all sorts of nicknames for me that continually nagged at me—instead of seeing me for who I truly was, I was reduced to my appearance.

I first became aware of lipedema through a television report. I immediately recognized myself in the images and stories. Finally, after all these years, I found a doctor who took me seriously and actually diagnosed me with Stage III lipedema. The diagnosis: lipedema of the arms and legs. I was relieved to finally have an explanation. For the first time, I no longer saw myself as a "failure" of all diets—but as a sufferer of a chronic illness.

But the fight wasn't over. Now I faced the next challenge: the decision to undergo surgery. To make this option available to everyone affected, I campaigned with an organization and on TV to have these surgeries finally recognized and covered by health insurance. It was a long and hard fight – but I made it! Although the journey isn't quite over yet, we've already achieved many successes.

I also founded a lipedema support group that helps approximately 4,000 people affected. This community gives us all the opportunity to exchange ideas, support each other, and learn from each other.

My goal is to help those affected – with or without surgery. I want to share my experiences to help others live a pain-free and confident life.

Testimonials
  • Burnout prevention

  • Nutritionist

  • Trainer & Coach

Qualifications
  • Leader of the Lipedema self-help group

  • Consultant for lipedema at the Chronically Ill Association

  • Cooperations with specialists

  • Media/TV - Lipedema Cost Reimbursement

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